Hashtag: disabilities

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Those of us with disabilities or chronic health conditions may know a thing or two about health anxiety. Health anxiety means that you are in a constant state of panic or worry about having a serious medical issue. And for those of us living with serious medical issues, this can be a very real possibility, not just an irrational thought. Lately my health has been causing me some problems. I’ve noticed my anxiety has gotten a lot worse surrounding possible outcomes. So I made a list to remind myself of things to remember. And I decided to make a post to share it with anyone else who needs reminding.💖 Image ID[ Things to remember when you’re disabled and feel health anxiety. While waiting for test results, try not to loop on the worst-case scenario. Remember that most things are treatable. Remind yourself of your track record and how many challenging things you have made it through so far. Realize that you are not alone. Think about your support system, whether that is an online community, therapist, support group, friend, or family member. Remind yourself that with chronic illness and past medical gaslighting, it’s no wonder you feel anxiety. You’re allowed to feel your emotions, just try not to let them get away from you. Practice responding to your body sensations differently. Start by telling yourself, not every ache and pain is life-threatening. Remember that for you unfortunately, feeling pain is normal. It’s OK to reach out to a professional if your health anxiety is negatively affecting your life. As disabled people, we have been through so much. It’s not unreasonable to ask for help.] #mcas #butyoudontlooksick #invisibleillness #chronicfatigue #chronicpain #actuallyautistic #autisticadults #disability #autism #fibrofighter #fibromyalgia #spoonielife #disabilities #chronicillness #chronicfatiguesyndrome #autoimmunedisease #ehlersdanlossyndrome #eds #spoonie #mastcellactivationdisorder #spoonies #ehlersdanlos #heds #invisibledisease #invisabledisability #autistic #chronicallyill
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15 days ago
2 years ago we went to matching panel for Avah and what a 2 years it's been ❤❤ Its been tough but it has also been amazing and that completely outweighs every tough moment we've had. We were slightly naïve at the beginning with Avah with her disability (we can see this now) but she has come on so much and now she's in school with that constant support from professionals that you don't always get at home we know she is going to thrive and we will always be your biggest cheerleaders! @adoption.uk @you.can .adopt . #ImageDescription a black and white photo of Jessica (a white female with brown hair who wears glasses and has a flower hair band on) who is holding and looking at Avah (a white toddler with blonde hair and who has a very serious face on) . #Adoption #AdoptionUK #AdoptionUKCommunity #AdoptionCommuityUK #YouCanAdopt #Love #LoveNotDNA #Disabilities #Disabilty #DisabilityAwareness #Dystonia #Hypertonia #GlobalDevelopmentDelayDay #GDD
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13 days ago
De struggles van de gehandicaptenparkeerkaart en parkeren. Mensen met een beperking moeten afpraken maken met artsen die vergunningen mogen uitschrijven om te bevestigen dat de gehandicapte nog steeds gehandicapt is. Dat gelamineerde papier ligt vervolgens elke keer in de auto. Vervolgens moet je niet vergeten om het zichtbaar bij het voorraam te leggen omdat je anders een boete krijgt. Een parkeerkaart die gehaald moet worden in een gemeentehuis waar de balies veel te hoog zijn, om vervolgens rondjes te rijden bij de parkeerplaats om te wachten tot er een invalideplek vrij is, waar regelmatig iemand op staat zonder invalideparkeerkaart. En zodra je terug komt bij de auto, heeft iemand over de lijnen geparkeerd waardoor je moet wachten tot de persoon van de andere auto terug is zodat je in de auto kan komen.
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2 days ago
*UN GRAN PODER CONLLEVA UNA GRAN RESPONSABILIDAD* Silvestre Méndez Blaksley Genéticamente mutado, SPIDERSILVER, o S.S. 🦸🏼‍♂️ “Suele ser asociado con una personalidad, amable, inventiva y optimista, lo que le ha llevado a ser catalogado como el «vecino amigable» de cualquiera lo cual, aunado a sus vivencias caracterizadas por los problemas cotidianos, atrajeron el interés del público al contrastar con el arquetipo de superhéroe de la industria 👊🏻. Entre sus habilidades destacan la fuerza y el combate. (Copy-paste de wikipedia) Hace poco le mostramos a Silvercapo a Spiderman en la tele y empezó a hacer una serie de demostraciones q detonaban la alegría q le producía verlo. Suele ser difícil q se enganche con la TV, pero después de este interés x este superhéroe, le pedí prestado a Luli mi cuñada el disfraz para q hoy vaya al cole así. Cuando ayer se lo mostramos volvió a repetir esa emoción x spiderman. Asiq hoy se fue al festejo del día de la primavera 🌸 vestido de su hoy elegido personaje favorito, q en mucho se parece a él. ♥️ Mi niño valiente, corajudo, con la capacidad de enfrentarse a lo que se le ponga de frente y avanzar, siempre avanzar. De pasos chiquitos como una araña 🕷 pero con la misma agilidad para cuando tiene que salir airoso. No te tira telarañas pero te mira con esos ojitos cuando están bien abiertos y caes desmayado en aus redes. ♥️ PD1: obviemos el sueño q manejan esos papiiisss PD2: siempre le estoy dando besos, pues la vida real en una sola foto. ————— #spiderman #spidermannowayhome #spider #familia #disfraz #primavera #primaveraverano2021 discapacidad #lista #deficiencia #disability #poderes #fuerza #mamaorgullosa #disabilities #hijoscondiscapacidad #metabolicdisorder #enfermedadesmetabolicas #epilepsia #epilepsy
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2 days ago
We still don’t have any answers as to what lead us here. Every team following Ellis is still at a loss to what has caused her current issues. Her current admission came from her being lethargic & her oxygen dropping into the 70s at home Tuesday evening, which landed her in the ER, and they intubated in the ER because her oxygen wasn’t coming up. As a kid with a shunt, they always have to check the shunt. She had her third CT and shunt series in a matter of less than a week and yet again, her shunt looked fine. However, neurosurgery felt like there were too many red flags (low heart rate, low oxygen, lethargic, sluggish pupils, vomiting, etc) for it not to be her shunt - so she had essentially exploratory surgery on Tuesday night to rule out the shunt. Which, they were able to do - they went into her head and her abdomen and the shunt was working fine and there weren’t any leaks. They’ve tested for all the things - viral infections, bacterial infections, pancreatitis, kidney stones, gallstones, respiratory infections, etc - everything has come back negative. They’re now testing a few theories based on some abnormal test results, but no definitive answers have really been found. Anything they’re looking at now doesn’t really correlate with her drop in oxygen and inability to be alert. If you’ve ever watched an episode of House or Grey’s Anatomy, it feels like we’re living in one of those ridiculous anomalies that play out on one of those medical dramas. Nothing makes sense. Ellis is still ventilated, although we have seen some ‘small’ improvements over the last day or so & she will hopefully be able to tolerate weaning her vent settings some later today. She did seem to try to wake up some this morning and we were able to get a few grins, which makes my momma heart settle a bit. For now though - we’re still searching for answers and asking for positive thoughts, good vibes, &/or prayers for our girl. I miss her happy disposition, I just want to cuddle up with my kid. ♥️
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15 days ago

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